Ukraine:
A Real Knockout (cont.)
“I don’t know.”
“Thanks.”
“How about Harvest Moon.”
She sang Harvest Moon. I joined
in on the chorus.” When that ended we sang “Bicycle
Built for Two” and “The Streets of New York.”
As we sang we held Luba’s arms and
turned around in a circle. Luba smiled and followed
along but again she didn’t seem to really get into
it. Halfway through the third rendition of “The Streets
of New York,” Luba’s eyes rolled back into her head.
I had never actually seen that happen in real life,
but here it was.
And then she fell backward.
I caught her and pressed my head
to her chest to make sure she was alive. She snored
lightly.
“She’s asleep!”
“She’s so comfortable with us she’s
sleeping.”
Sherry was not sure. But I was.
I felt myself grinning widely. We took turns holding
her while she slept. As I held her I felt a sun rising
in my chest. Nothing felt more comfortable in the
world than holding this child. Sherry took a picture
of me while I held Luba and it is true I do have a
wide grin on my face. I can’t look at that picture
anymore, without feeling a stab.
Three days into the adoption process
we dropped by an internet café to send photos
of Luba to our friends. We had e-mailed both doctors
and both doctors had failed to reply. I knew that
we had e-mailed them on the weekend, but surely they
opened their email on Saturdays or Sundays. Evidently
not.
We stopped into the very modern
looking one we always went to, the one along the main
shopping district. It was a very stainless steel and
glass kind of place, with an adjacent coffee shop,
and lots of new computers that would have gleamed
if they weren’t so dusty.
I gave the college age woman behind
the counter enough cash to rent a machine for an hour
and we chose one far from the front door. Then I went
over the coffee shop with Irina to get drinks. Irina
stayed in the shop while I carried my tea and Sherry’s
coffee to her at the terminal.
I joined Sherry, set her cup down
carefully, and was sipping my tea when Sherry gasped,
“Oh, no.” I turned to the computer, thinking it had
crashed again. Ukrainian computers crashed even more
often than American ones did.
On the screen was an email from
the Orphan Doctor. The day before we had sent her
the information about Luba, her height, her weight,
her head size. I will never forget the chill that
shot through me as I read.
“I have looked at the e-mail materials
that you sent on 5/18. She is microcephalic, which
has a poor prognosis for future normal development.
This is an extremely risky referral. The photos are
adorable and she has no facial features of fetal alcohol
syndrome.”
The email from the second doctor
we were consulting with was no more reassuring.
“The history of prematurity, with
no info about the mother, is concerning. Her head
circumference is that of a fifteen and one-half month-old
at the fifth percentile, the weight is that of an
eighteen and one-half month-old at the fifth percentile,
and her height is that of a seventeen-month-old at
the fifth percentile. Maternal drinking during pregnancy
is a consideration to explain her small head, prematurity,
and severe speech delay. If she just didn't get enough
to eat, then she should be short or light, but with
a normal head/ brain size. That first eight months
of life could have damaged her ability to bond and
lowered her IQ, Her photos show a child with a proportionately
small head (vs. height and weight), a fairly OK ear,
a philtrum that is gone in the frontal view, but not
from the front, and eyes that do not look huge (If
she has normal-sized eyes in a small head, they should
look larger than normal). These are factors that raise
the risk of Fetal Alcohol Syndrome. Attached is a
picture of FAS, and what to look for. I hope this
is helpful. Whatever you decide to do is right. But
this decision is yours. If you decide to proceed,
and she has problems, we can struggle to make her
the best she can be.”
“Microcephalic,” I sighed.
I knew what a microcephalic was.
Zippy the pinhead was microcephalic. Microcephalics
are people whose heads don’t grow as fast as their
bodies.
A quick google search revealed a
bigger problem with microcephalics. Their skulls don’t
grow as fast as their brains, that puts bone on a
collision course with brain matter, and when they
collide, around twp and half, the child experiences
seizures and brain damage.
I took another sip of my tea, but
it went down wrong, and I ended up spraying the computer
monitor as I coughed.
I spent a long time in the bathroom
at the Internet Café, sitting on the toilet,
staring into the fogged mirror over the dirty, cracked
sink. I looked into the eyes of the person looking
back and tried to guess what was on his mind.
I thought about Luba in the frilly
dress and the bossy nurse who shouted at Luba while
she sat at the piano and phrases from the two emails
kept coming back to me: “microcephalic,” “poor prognosis,”
“extremely risky.”
“If she just didn't get enough to
eat,” I could hear Doctor Ochs’ voice as I remembered
this line, “ then she should be short or light, but
with a normal head/ brain size.”
Suddenly everything took on a new
meaning. The nurse had had to shout at Luba. It was
the only way to get through to her. Luba played with
one year olds because already two year olds were too
advanced for her. And her passivity, God, that could
indicate lots of things, none of them good.
And then I saw myself holding her
while she slept. And the odd way she fell asleep,
from a standing position, eyes rolling back into her
head. “Seizure,” I whispered to myself, as if giving
it a name would somehow sooth me: “Seizure.”
All that was solid in my mind melted
away. The trip to the park, to the zoo, to the children’s
museum. The bushy haired teenager, with the slutty
clothes and the Elvis Presley sneer. The tiny feminine
voice that would have called me Daddy even when she
was in the middle of full-blown, raging, hormone-powered
rebellion.
I sighed. It was all gone. The person
in the mirror blinked and stared. So did I. Outside,
in the internet café, I could hear Beatles
songs playing: “Dear Prudence” and “Julia”. But in
my head I heard the line about Ukrainian girls from
“Back in the U.S.S.R.”
Then there was a knock on the door.
“Jack? Are you alright?”
“Yes.
“We’re going to have to tell Irina.”
“I know.”
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